Collection and protection of genomic data

Authored by: Edward S. Dove

Handbook of Genomics, Health and Society

Print publication date:  April  2018
Online publication date:  April  2018

Print ISBN: 9781138211957
eBook ISBN: 9781315451695
Adobe ISBN:

10.4324/9781315451695-20

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Abstract

However laudable the growing collection and use of genomic data may be from medico-scientific, economic, and social viewpoints, many people worry about the impact of this activity – if not about the nature of genomic data itself – on their privacy and the privacy of others. Arguably, privacy concerns have only intensified in recent years in the midst of deeper penetration of communication networks, advances in sequencing technology and information technology infrastructure (e.g. cloud computing), direct-to-consumer genetic testing, proliferation of systems such as artificial intelligence, and increasing commercial access to health-related patient data (Dove et al., 2017; Dove and Phillips, 2015).

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